Giving Up Dilemma
When you are diagnosed with a life changing condition, giving up feels unavoidable. It puts you in a vulnerable state where you feel like your world has crumbled before you. Sometimes it can be difficult to cope and sometimes you are able to carry on like it’s the normal. Obviously, at times you will feel down or lost due to your disability/ illness but that is part of being human. Even with my experience of having Duchenne Muscular Dystrophy, I go through tough times for time to time. While it isn’t necessarily the end of the world, it can still feel like your life is truly over. However, I assure you that life is still worth living.
Accepting the fact it would get worse and battling the condition to stay walking were the most challenging parts of having Duchenne Muscular Dystrophy. It was always easier to become fully reliant on the powerchair/ wheelchair but this was not something I wanted. Living life to the fullest was my dream and I didn’t want the progressive nature of the condition stop me from living a normal life. Driving a car, going to university, pursuing a career and being successful at it. All those things and more were dreams I wanted to do throughout my life. Many of these dreams have already been accomplished but I am continuously push myself for greatness.
Fortunately, thanks for my loving parents always been there to support me, I was able to endure a lot of things related to my disability. All the way through my years, they would spend the extra time if it meant we would keep walking. At times we would need an extra couple hours to get from one point to another but it was good exercise. Giving up wasn’t an option for me but that doesn’t mean my disability doesn’t affect me in other ways.
Barriers is another issue about accepting disability. Not everything will be straight forward especially with disability. It can be easier to sit around and blame your disability and do nothing about it, but why let your disability live your life for you? Take control of your disability, don’t let it control your life! I think this is one of the most important things as adaptability can make you unstoppable and help you carry out those lifelong dreams.
Simple Things Help
Simply by doing the simple/ small things to help you get by, coping can be so much easier. While I can’t walk now, I have still always found ways to compensate. I use a desk chair at home now to help me move around the house, which means I’m still keeping muscle in areas it would otherwise be wasted. No matter how bad the times may be, doing simple things like getting proper sleep, talking to friends, family or having time to yourself is enough to feel better about the current situation.
However, that’s not saying this would work for everyone. Everyone has their own way of getting positive energy and it’s important to thing of simple ways to help you living your life the best you can. Life is short after all.
Helping Each Other
In the workplace, this is extremely important as supporting other at work can help you stay productive. Especially if you work in a team, helping make other people on the teams life easier can make the difference. Talking to them can also help them as sometimes they just need to explain their worries with someone they trust. I found that discussing my disability, especially how it will affect me and my worries was a good way for me to stay positive about my disability. It’s okay not to feel okay and getting things off your chest can help millions during a difficult time.
Love is Powerful
Love is an amazing thing. Whether it is from professionals, friends, family or a significant other, there are people there who can support you through the toughest of times. It is also important to help them as well, as everyone needs a shoulder to lean on sometimes. It can be exhausting and quite frustrating at times but people are there to help you, much like my family and friends did.
For more experiences like this, please visit the Dynamic Double blog.